Monday, September 2

The 10 Rights of People with Dementia


Watch this video on the 10 most basic rights of people with dementia. Then download the charter entitled, 'I Can Live Well with Dementia'.

As the largest international provider of specialist dementia care, and the only international federation of Alzheimer associations and global voice on dementia, Bupa and the Alzheimer's Disease International intend to revolutionize care and to campaign to ensure people living with dementia live well, and that their family and friends are properly supported.

That is why we have joined forces to outline, for the first time, what we believe are the rights of people living with dementia, wherever they are in the world. Our joint Global Dementia Charter has been written for, and endorsed by, people living with the condition.

The 'I Can Live Well with Dementia' Charter outlines the rights that people living with dementia around the world should be able to expect to allow them to live well.

Worldwide Dementia Planning

The Charter marks another step in the call for governments worldwide to develop national dementia plans to protect the rights of people with dementia and their carers.

The Charter contains ten points written from the perspective of someone living with dementia as they experience their journey through dementia, from pre-diagnosis to the final stages, including support for family members after their loved one passes away. The Charter can function as a benchmark by which dementia care and support can be measured and judged.

‘Enablers’ Can Improve Dementia Care

The Charter is supported by ‘enablers’, a list of actions and accountabilities that outlines what families, friends, carers, healthcare professionals, commissioners or purchasers of care, healthcare providers, society and governments can do to improve dementia care and support in their country, alongside the development of a national plan.

We are committed to shaping global dementia care and having people living with dementia lead happier lives, for as long as they can. That is our vision. This is our purpose.


The charter
Spanish Version of Video Above

Amazon Films - Alzheimer's, Love & Family: (Article continued below ad...)

  • Bupa
About Bupa:
  • Bupa’s purpose is longer, healthier, happier lives.
  • A leading international healthcare group, we serve over 14 million customers in more than 190 countries.
  • We offer personal and company-financed health insurance and medical subscription products, run hospitals, provide workplace health services, home healthcare, health assessments and chronic disease management services. We are also a major international provider of nursing and residential care for elderly people.
  • With no shareholders, we invest our profits to provide more and better healthcare and fulfil our purpose.
  • Bupa employs more than 62,000 people, principally in the UK, Australia, Spain, Poland, New Zealand and the USA, as well as Saudi Arabia, Hong Kong, India, Thailand, China and across Latin America.
About Bupa’s social care services around the world:
  • Bupa cares for more than 30,000 people in more than 460 care homes and retirement villages in the UK, Spain, Australia, New Zealand and Poland.
  • Bupa is the largest international provider of specialist dementia care, caring for more than 19,000 residents with dementia.
  • In the UK, Bupa Care Services looks after more than 17,900 residents in almost 300 care homes.
  • In Australia, Bupa Care Services Australia currently operates 60 care homes caring for 5,300 residents.
  • In New Zealand, Bupa Care Services New Zealand cares for more than 4,600 people in 48 homes, 21 care villages and seven rehabilitation sites and also provides telecare services via a personal alarm network.
  • In Spain, Bupa (Sanitas Residencial) cares for around 4,400 residents in 40 care homes.
  • In Poland, Bupa (LUXMED) has a large care home in Warsaw.
For more information, visit bupa.com/dementia

Comment or Share:

  1. It's also important for families of a loved one with dementia to know that oftentimes people with dementia are wrongfully taken into guardianship or conservatorship under the guise of "protection." The proceedings (meant to protect) strip the alleged incompetent person of his/her fundamental liberties, including the right to complain. Families get shunted aside and are often completely in the dark in regard to care and medical issues related to their loved ones. It's a nightmare that never ends and it's not only happening in our country, but it's growing.

    Join the national movement for reform of unlawful and abusive guardianships and conservatorships. Join NASGA: www.StopGuardianAbuse.org.

  2. This is all idealistic and ‘pie-in-the sky’ but realistically it doesn’t provide much to patients or their families.

    1.Access to a diagnosis? OK sure, but I know of no Alzheimer’s organization that has developed any ethical standards that must be included in an accurate diagnosis. Some people get a million dollar work up with CT, MRI and the latest PET scans. Others get a prescription for Aricept after they could not remember the date during a cursory exam. How about publishing the minimum tests and exams that MUST BE included in a dementia exam?

    2. Access to information? How about MANDATORY information. At one time any AIDS diagnosis was REQUIRED to be followed up with counseling. But sadly a dementia patient can leave their doctor’s office without receiving any follow up information. How about requiring classes for the patient AND their family? How about the mandatory distribution of the book The 36 Hour Day to every new diagnosis?

    3. Living independently, Having input into a care plan and Receiving high quality care have nothing to do with dementia specifically. These are things the EVERY person with ANY DISEASE has or should have the right to.

    4. Access to medicine that helps? Certainly! However does this include STOPPING medicines that are no longer effective? Does this mandate third party coverage for EVERY new medication that comes along? Then what about powerful psych medications that calm a person, stop hallucinations, and make them less violent and manageable so that they can receive compassionate care? Anti-psychotic meds are not all bad.

    5. Family to have good memories of me? Sorry, but it will be a very long time before I have any memories of my wife as a capable, competent, educated person. Unfortunately the memories of her unable to read, speak, dress & toilet herself or even walk, will last a very long time. The memories of performing her care having almost killed me will never go away. I WISH I had good memories of my wife but Alzheimer’s took them from me and replaced them with a monster.

    6. End of life decisions? Does this include a ‘suicide’? Very nicely portrayed in Still Allice (book & movie) she WANTED to kill herself before she became a burden to her family. However this end of life plan was denied her. Sometimes end of life care means dropping out of the race before you have gone the complete distance.

    Sadly this is list is too superficial to make any real impact on the lives of dementia patients or their families.

    1. Thank you, your reply articulated my thoughts beautifully!!


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