Tuesday, March 12

Fooling the Doctor: Cognitive-Reserve Hides Alzheimer's


Don Hayen is a retired doctor, diagnosed with Alzheimer's at 71. But that diagnosis took way too long. Find out how his "cognitive reserve" fooled his doctors. See why he sure wishes it hadn't.

  • KPBS News

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  1. Alzheimer is such a scary disease. My best friend's mother had it and I helped take care of her for the last year or so of her life. It was a difficult time.

    1. You're a great friend to help look after your friends mother. That's such a rare thing to see.

  2. It is extremely frustrating. I was a psychologist up to my retirement 4 years ago. Became conscious of symptoms 3 years ago, when old friends noticed changes in my behaviour, but doctors are reluctant to give me the diagnosis of FTD, although they mention it regularly, because I am functioning "too well"! I know I am able to function because of the strategies that I have in place, but live alone and receive no support because my current diagnosis is mild cognitive impairment. They do not see the struggle that goes into maintaining function!!!!!

  3. Dr Hayen

    Little old lady? Aren't you a little old man? I thought PET scan was used to show build up of tangles which often precedes Alzheimer diagnosis. The issue is: some people with tangles never present with cognitive issues issue. There is much we don 't know. I wish you the best .

  4. I served with Don on Alz.org's 2nd Early Stage Advisory Group in 2007, to which he refers in this video interview. I believe the interview is at least 10 years old, and a lot has changed since then in the way the disease is perceived, and its diagnostic criteria has been completely changed. So his comments are really outdated. I've been reading your blog since my diagnosis in 2005, and think it's irresponsible for you to publish it without dating it.


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