Tuesday, July 6

How I Feel About My Dementia


Meet 6 people living fulfilling, interesting lives with dementia. This award-winning, true film will help you understand the needs and feel the feelings of real people with dementia.

  • Social Care Institute for Excellence (SCIE)

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  1. Enjoy all of the person as they are now. There is always more left than there is gone, if any of the person is gone.

  2. Thank you very much for posting. Sharing to PWD Perspective FaceBook page. -- Full legal name Truthful Loving Kindness

  3. What is the point of this film? 6 very early stage people whose symptoms are hardly detectable.
    Are they in a full time care facility? If so why? They dont seem that bad
    They talk about their capabilities but they are not living on their own. Why not?

    Are you trying to show that they are capable? OK, they might be right now, today but what about tomorrow?? THAT is the tragedy of dementia.

    Are you trying to show they are capable? Ok, why dont you show the WHOLE TRUTH and come back again in a year or 2 years or 5 years? The truth and tragedy of dementia is the decline that EACH of them will experience!

    This film is a quick snapshot of the few good times in a continuum that lasts (sadly) for too long of a time.

    If you want to show the truth of dementia show them screaming uncontrollably. Show them hitting their care givers because they have no idea who they are. Show them unable to dress or unable to toilet.

    Sadly it is films like this that give people the wrong idea. Dementia is horrible!

    A film like this is like filming cancer patients on their good days after chemo or radiation and then trying to imply that "Cancer treatment aint that bad"
    Fact: Cancer treatment is horrible and so is dementia.

    I also have to question why you are showing only HALF the victims of dementia?
    Every one of these people have others somewhere who love/loved them. Co-workers who at one time depended on them. Where are they?

    Your conclusion talks about support and dignity for the person with dementia. This unique disease ALSO affects the friends and family. Have you intentionally left out how their friends and family receive support and find dignity?

    Telling half a story can be worse than showing the whole truth and THIS is telling only half the story. Disappointing, very disappointing . . .

  4. I see the aim of the people is to show that people can function as well as to provide some insight as to how people feel about the conditions. Yes there is a downside, i.e. where a person is suffering for a severe form of dementia (screaming uncontrollably)but there are many people today living out there in the community who have the form of dementia you see in this film and it has never been formally diagnosed. The problem with showing the severest form of the condition is that it stigmatizes ALL who have the diagnosis unfairly. I applaud the film-makers because this is the environment where many, many people are living with the condition on a daily basis


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